Empowering self-advocates and families

Facilitating co-production in service development and project management, developing effective methods to involve people in co design in good practice and reduces the risk of challenge:

Our associate Dene Donalds leads on the facilitation of our Welcome Values programme. This project provides a tool for assessing the quality of a social care provider. The project utilises the skills, knowledge and experience of learning disabled people and family members by directly involving them in a volunteering role as experts by experience. Welcome Values are being used already across 6 provider organisations in Central Lancashire and across Castlebeck services. The reviews are fed back to the service providers to influence positive change. Our associate Vicki Hornby has experience of developing national practices to support co-production, as well as supporting disabled people to design, deliver and evaluate services. She also has supported disabled people to respond to government consultations. Our associate Pauline Doyle is working with families and co-ordinators in developing skills for planning in health, education, and social care.

 

Reviewing the inclusivity and effectiveness of partnership boards and other inclusive structures/systems.

In partnership with NW ADASS, our associate Lynn James-Jenkinson has led the data collection to review the effectiveness of partnership boards. Both Lynn and Dene Donalds have supported Partnership Boards in Lancashire, Oldham, Trafford, Manchester, Rochdale and Bury to review their effectiveness.

 

Developing and capacity-building for self-advocacy groups and user-led organisations, especially around delivering peer advocacy, peer support and circles of support

Our associate Laurence Clark ran a series of one-day workshops across the region on developing and capacity building user-led organisations. Laurence also worked with a group of disabled people and family members in Bury to develop and formally constitute a new user-led organisation. Our associate Dene Donalds is the regional self-advocacy co-ordinator for the North West Region on behalf of NHS England, supporting self-advocates on the National Forum. Dene also facilitates our Welcome Values project as a method of developing peer support skills of self-advocates. Our associate Vicki Hornby has experience of supporting self-advocacy groups in the North West.

 

Coaching and mentoring for self-advocates and families around confidence-building, assertiveness and communicating with professionals.

In Oldham our associate Adele Hoskison-Clark ran a course of workshops for parents of disabled children around confidence-building, assertiveness and communicating with professionals.

 

Undertaking all aspects of strategy development, including research, consultation, writing and delivering strategic plans.

Our associate Laurence Clark and our research team worked in Liverpool to develop their short breaks strategy. Laurence has also undertaken 2 consultation projects for Sefton Council around aiming high and their childcare provision for children with additional needs, both of which informed their strategy.

 

Developing effective care pathways

Our associates have experience of working with stakeholders to develop effective care pathways in areas such as transition, dementia and autism.